OpenZinca.
OpenZinca is Zinca's public-interest platform for rare disease and long-term health communities. It turns lived experience, evidence-based knowledge, and practical digital tools into resources that patients, families, clinicians, researchers, and community partners can use more easily.
The platform begins with Wilson disease, but its purpose is broader: to make trustworthy health information and practical support easier to reach for small, underserved patient communities.
Two starting points for Wilson disease families.
Our free patient-education website, LivingWithWilson.org, is open to everyone today — and a Wilson disease lifestyle management app is on the way, for people living with Wilson disease and the families who support them.
Everyday support, in your pocket.
We are building a Wilson disease lifestyle management app: practical, everyday help for low-copper eating and daily routines, designed with the community and grounded in the same evidence base as our education work.
It is still in development. Join the list and we will let you know the moment it is ready.
Join the list →livingwithwilson.org
The first OpenZinca project. A free, ad-free education library for people living with Wilson disease, their families, and the clinicians who care for them. Evidence-based, translated into multiple languages.
Covers the daily questions that mainstream medicine often does not have time for — diet, monitoring, side effects, family planning, mental health, and what to ask at the next appointment.
All content is free. No subscription. No advertising. No tracking pixels. New articles and translations are published on a rolling basis.
Editorial standard · Content is reviewed for evidence quality before publication. Where the literature is limited or contested, this is stated openly. The library is an educational resource and is not a substitute for the relationship between you and your treating physician.